January 24, 2013
I've been thinking of starting a blog for a while, but quite frankly I have a love-hate relationship with technology. I love it, but hate that I'm not smart enough to figure it out. So, here we are...
Most people reading this already know my background, so bear with me. I am currently 39 years old (and plan on staying that age), have a wonderful husband, and 2 of the most amazing children I have ever met. I'm not saying that because they are mine, I'm saying it because it's true. Jordan, who recently turned 20, has severe autism, moderate mental retardation, has a severe sleep disorder, a general anxiety disorder, a possible mood disorder and is completely non-verbal. Yes, he has a diagnosis on every axis of the DSMV. Brett, who is 14, has high functioning autism, mild mental retardation, an anxiety disorder and AD/HD. Every day is a challenge for them. Some are successes. Some...not so much.
In the past couple of months, we have had a major change. We decided to withdraw Jordan from school, as it was a poor environment for him. His melt downs and negative behaviors had skyrocketed and I couldn't stand seeing him so miserable. Fortunately, I am an at home Mom and we are are able to keep him at home, working on speech goals, behavior goals, fixing a lot of things that were 'broke'. Now, I'm literally dealing with autism 24/7. I have to schedule my free time, and sometimes that falls through, anyway. Hopefully, this forum will help me let some things out, and let some people know more about what we deal with on a daily basis. I'll warn you. I'm going to be brutally honest and will not sugar coat anything. I'm done doing that, it's time to get real.
By doing this blog, you are letting people know what autism is really about. I can only imagine the daily struggles that you have. I love you and will support you in any way possible!
ReplyDeleteI am so glad you got started! We have grown to love you and your family in the last 6 years! We will never understand the daily struggles you have, but we know it is not an easy task. I hope by journaling it will help people understand your amazing family better. As always, if you need anything we are here!
ReplyDeleteI'm glad you are blogging! My daughter is 12, has autism and is nonverbal. It's helpful for me to hear from those with kids a little older. I look forward to your posts.
ReplyDeleteThank you for sharing your personal experiences. I know Kristin and Flo from soccer. My son is almost 6, PDD-NOS, high functioning, though we are friends with a family who has a non-verbal son.
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